Already in use in a seminary or church near you…
Already in use in a seminary or church near you…
today. The sun is warm, and winter is giving way to better things. There are places to go and things to see, music to be made, and poetry to be written.
No more time for the recliner and the stale air inside the house. I have plans for a garden on the boulevard and where to to put my abundance of Brown Eyed Susans. Just a few degrees warmer and my bicycle will end its hibernation in the garage and together we will see what there is to see.
I am older now and therefore each spring is more precious, more unrepeatable. Walk while you can. Breather fresh air while you can. Make music while you can. Walk barefoot while you can.
there is no perfect place, no perfect job, no perfect church, no perfect life. In everything and everywhere there will be moments of joy and moments of challenge and nothing will ever be just the way you imagined it would be no matter how hard you try.
There’s a kind of disappointment in this. Surely one thing in this existence could be at least close to what you imagine it’s supposed to be. Yet, while some things may come achingly close, nothing will ever be “it”. In fact the closer they come the greater the disappointment when the flaw that mars comes to the surface. Just when you thought you won the prize, the reality of life does something to pull it from your fingers. It’s, perhaps, one of the most maddening things about being human.
There’s also a freedom, though, in this realization. Accepting there is no perfect anything on this Earth and in this life gives the gift of wisdom, of patience, and a release from the tyranny of perfection into the cool waters of grace. One can be set free to enjoy that which is beautiful and release that which is less so when you realize that a normal life will have parts of both. The good can also become more precious and the harsh can be more temporary when you realize all things pass and see life through this window.
And then there is heaven which seems, as I grow older, to be less like any image I have of it and more like an existence where I can simply “be” as I was meant to be because the presence of God will fulfill all my expectations and heal the imperfections and unrealities of my life. One of the great gifts of getting older is that having seen so much of the world over the years one realizes the quiet ache in your heart on even the best of days is a sign there is more and better and it’s closer than you think. Stepping through that door you realize you’re more at home there than any place your travels in this world may have taken you. Every beauty here is a sign of a greater one to come and every challenge is a reminder of a larger day when all such things will pass.
as it travels to the little world that is 4th floor. Slow enough so that people in wheelchairs don’t have the doors slammed on them and slow enough to provide a moment of transition from everything below to everything above.
On the 1st floor are the offices and corporate things. Most everything is beautifully arranged with a view of the gardens and grounds. A post card serenity is there with a background of light Christian music. You imagine your grandmother there. Indeed, you can imagine yourself there some day, a suburban place of rest and relaxation where, after years of work and challenge, you can literally sit on a park bench and watch the lake change with the seasons. It’s that good.
As the elevator proceeds up each floor harder things become more apparent. People who are ill. People for whom the picture postcard of retirement turned into a scrum of illness, deterioration, and a single room with a few possessions and, if you are fortunate, no roommate. 4th floor, at the top, is where this truth of growing old and changing is where that other reality is most real.
Alzheimer’s disease is an illness of the brain. No one is quite sure how you get it and no one knows how to stop it. It kills you, eventually, but not before the person you thought you were gets slowly erased one brain cell at a time until your brain simply tells the rest of you to stop living. Even a cancer has a slim chance but right now there is no chance for the person with Alzheimer’s.
There are times when the very word is fraught with peril. Imagine the mixed emotions to be descendants of Dr. Alzheimer, the person who gave his name to this terrible thing because he began the process of figuring out what it was but also a name that can strike abject terror into the person sitting across from the doctor. If you hear that word, and the diagnosis is true, you will die but not before you change into something you wouldn’t recognize even if you could and the thought of it is a pain worse than any other illness.
The only respite is that eventually you won’t know what’s happening to you. The earliest stages are the toughest because you remain, for a while, aware of the changes, aware there is something terribly wrong happening, and you enter a world where nothing is the same even minute by minute. You can be lost within three feet of where you once stood and the people and places you knew slowly fade out of your comprehension, becoming thoughts you struggle to grasp and words that evade your tongue. As things progress you will lose control of your bowel and bladder and your speech, if it exists, will become gibberish. You may be able to smile but the rest of the world will become a blur where you are moved from place to place and tended to like an infant because, well, you are becoming one. The one good thing, perhaps, is that your death will be quite peaceful, gentle even, as the ravages of the disease give way to a simple falling asleep.
As you ride the elevator from 1st to 4th floor you prepare for this, the people who work as helpers and the families and friends of those who bear this terrible burden. What will I see today? How will this person, or people, I care for be when the door opens and I see them in this place? At best you hope they are at a certain place of comfort and peace. At worst you prepare for what you might need to do when the ravages of this disease turn ugly inside of them. Mostly it’s a little of each.
Some can’t take it at all. Family members who can’t bear the sight slip quietly off the floor never to be seen again until the very end. There’s too much trauma, too much loss, too much heartbreak to bear to look again. That’s understandable. Others are in for the long haul, women, mostly, who come sometimes every day and keep watch as their loved one slips away. Occasionally there is a husband and wife who have taken their vows to this end, a love that refuses to die even in the face of this monstrous thing.
And when you work on this floor, this place where the sometimes forgotten and forgetting have found shelter, you make up your mind to get through this day as best you can. Things will be messy, they always are. Yet, there will also be moments when love breaks through even the horrible reality of Alzheimer’s Disease. There is a quiet confidence that even though the people you care for will forget you and the world will as well (Who, in our cult of youth, wants to remember the suffering and broken?) that God remembers and good, even when it’s never noticed, still has an eternal quality to it.
So the elevator is slow, it has to be, but you press the button for 4th floor and stay the course.
they get to where I work they’ve already been through the system and this is pretty much the end of the line. Wards of the state, their illness, injury, or tragedy has brought them to the nursing home, the last stop in the medical/industrial complex.
Here they will have food, shelter, and medical care until the end. The least we can do, I suppose, for people who were once lovers, friends, workers, leaders, everything that any human being is, and now are laid low by the nature of things. In this place, stripped of most every possession except a room, or half of one, they will pass their days and rage, as the poet says, against the dying of the light.
No one wants to be here, of course, and everyone who is has a trail of loss that led, like bread crumbs on the ground, to this place. Provided by a long ago charity as a way to help the poorest find some dignity in their ending days this place has become the place of choice for world too busy to share the lives of those who have succumbed, as we must all, to the sometimes debilitating end of life. We’ve grown too old for our own good and we’ve added years for the sake of themselves and so we’ve come to this place, a charity for a culture so caught up in its own busy life that it hardly recognizes itself let alone its frail grandparents.
There is a certain sadness here. Those who’ve chosen to serve in these places know that we can never do all that needs to be done and meet every need. There are simply too many of them and too few of us. People who’ve already fallen through the cracks will fall again despite our best intentions. Everyone we throw our own life’s energy into will die no matter what we do. And we will watch it all from the time we clock in until the time we, often exhausted, clock out.
There is also, though, goodness and love here. It’s an imperfect system in an imperfect world but the people who care and have made this system their cause will also fill this place with a kind of love and goodness, both given and received, that only those within can completely understand. It comes mostly in fits and starts, moments in the continuum where a person who has traveled along the medical assembly line finds connection, rest, something to laugh about, or just a dry bottom to make them feel more comfortable. We’re all tired, the people who help and those who need help, but those moments are precious because they’re more real than any wealth and more human than can be possibly imagined.
Jesus is here, too. He just looks like an old man trying to move down the hall in a wheelchair after a stroke. One leg pulls, one arm tries to keep the wheels straight, and Simon of Cyrene is a young woman from Africa who works as a nursing assistant and helps him get where he needs to go. In its own way it’s a place close to God, close for the people who are ending their lives within it’s walls and close for those who serve God in the frailty and even the chaos of those who call this place, for lack of a better word, home.
In the end, it would be a better world if the old could stay with their loved ones for the entire journey and our culture would see that as a value and shape itself around this reality rather than keep the busy busier and discard those who no longer have the strength to make money. Until that time we have these places and the people who try to make the best of a bad situation. While you sleep we’ll keep the light, in all its forms, on and every time we clock on will be a silent witness to what makes us human in the best sense of the word.
I would leave the house in the wee hours of the morning. A little latch release here and a small push on the screen and I was out.
I meant no harm. I simply walked the streets of my town and enjoyed the alone and the quiet. The dark was cool and pleasant and while the rest of the world was asleep I was awake with my thoughts, my dreams, and the shadows.
Often I still wake up in the earliest part of the morning and while I most often don’t leave the house I will quietly slip out of bed and think about the world. It can be a time of prayer as the stillness of the hour lends itself to such things. I think of people, they dance in and out of my mind, and I mention them to God. Some are close to me and within my day to day life. Others I haven’t seen in decades. Yet the names come to me and I think of where they are and what they’re doing and how life has been for them and give God their name. He knows what I do not and He can care for them in ways that time and distance prevent me from doing.
This may be one of those nights, a night when God nudges me awake at a time when the cares and noise of life are few and far between and there is time for us to talk. While the quiet settles over St. Paul and the old day becomes the new is a holy hour, a gift better than any dream and rest beyond sleep.